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E10260
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020
台灣失智症疾病成本估計
Cost of Illness of Dementia in Taiwan
1.古鯉榕
1.Li-jung Ku
1.國立成功大學醫學系公共衛生科暨研究所
1.Department of Public Health, National Cheng Kung University
001,002,003,004
1.國立成功大學醫學系公共衛生科暨研究所
1.Department of Public Health, National Cheng Kung University
002
1.科技部
1.Ministry of Science and Technology
A.14 計畫執行期間(起):2013-08-01
A.14 計畫執行期間(訖):2016-07-31
2013-11-012015-04-302015-11-012016-06-30
A.16 收到日期:2016-03-22
2
失智症病人(南台灣地區)

1

第一波:279
第二波:186


279
001,002
01
C.2 聯絡日期:2016-03-24
2
1.國立成功大學醫學系公共衛生科暨研究所
1.Department of Public Health, National Cheng Kung University
1
C.7 資料公開日期:2017-08-01
2
008
1
1
2
1
5
3
3
001
1,2
1.失智症
2.疾病成本
3.家庭照顧者
4.照顧成本
1.Cost of Illness
2.Dementia, Informal Care
3.Disease Severity
4.Economics
研究背景:國際失智症協會的研究估計2010年全球有3560萬人罹患失智症,預計每20年增加一倍人數。國内最新的流行病學調查顯示失智症在台灣65歲以上失智人口的盛行率達4.97%,預估將由民國100年的15.3萬人增加至150年的61.9萬人。失智症既為一個退化性疾病,從輕度時期逐漸退化進入中度、重度的時間不一定,隨著患者功能的退化,持續的照護責任是對照顧者的身心健康都是一大挑戰,需要深入瞭解失智症家庭照顧者的主觀負荷與客觀負荷(照顧成本)。
研究目的:建立南台灣的一個失智症的研究世代(dementiacohort)樣本,探討影響失智症家庭照顧者的主觀照顧負荷與客觀負荷的影響因素,包括失智症患者的疾病特性、主要照顧者的人口特性,照顧關係,以及社會支持等因素,並比較兩類照顧負荷的影響因素的異同,以及各因素的改變如何影響負荷的變化趨勢。
研究方法:延續2013年11月起於成大醫院失智症特別門診收案的第一波調查,對病患及其主要照顧者以雙人一組(dyad)進行追蹤調查,照顧者接受結構式問卷調查,蒐集包含人口學變項、主觀負荷感受、照顧時數、與患者的照顧關係、社會支持與照顧成本等資料。失智症患者疾病相關的測量包括:認知功能、精神行為症狀以及日常生活功能。統計分析首先將以階層迴歸分析比較不同類的影響因子分別對於主觀負荷與客觀負荷的解釋力的差異,並以隨機效果模型(randomeffectsmodel)分析患者疾病嚴重度的改變分別對於主觀與客觀照顧負荷的影響幅度。
預期結果:本研究的成果希望能使社會對於失智症患者照顧者所承受的負荷能有所重視,並提供政府未來發展失智症家屬支持服務的參考,進而建構更完整的失智症照護的社會支持系統。

Background: According to the World Alzheimer Report commissioned by Alzheimer,s Disease International, there are 35.6 million people with dementia worldwide, and the number of people with dementia is expected to double in the next 20 years. Latest nationwide epidemiological studies in Taiwan found the prevalence of dementia was 4.79% among those 65 years and older, and the prevalent case number is expected to increase from 153,000 in 2011 to 619,000 in 2061. As a degenerative disease, the progression of dementia from mild, moderate, to severe stage may take different time for different individuals, but continued care provision remains a significant challenge for family caregivers of dementia patients both physically and mentally. Therefore, the subjective and objective burden needs further research. Objective: This study seeks to establish a dementia cohort consisting of both dementia patients and their caregivers to understand predictors of objective and subjective measures of caregiver burden. Potential predictors include patient characteristics, caregiver characteristics, relationship to patient, and social support. This study seeks to compare the significant predictors across both types of caregiver burden and to examine how the change in a certain factor affects the longitudinal trend of caregiver burden. Methods: This study is a follow-up survey of the baseline assessment which was conducted in the Alzheimer,s Disease Special Clinic at NCKU hospital since November, 2013. The following data was collected from dementia caregivers using structured questionnaires: demographic characteristics, subjective burden, caregiving hours, relationship to patient, social support, and costs of care. Data collected from dementia patients include cognitive impairment, behavioral and psychological symptoms of dementia, and functional dependence. We will use hierarchical regression to examine the relationship of patient or caregiver characteristics with caregiver burden measures and changes in the amount of variance explained. We will also use random effects models to estimate the effects of each set of factors on subjective and objective caregiver burden measures. Expected Results: By identifying modifiable factors which could alleviate burden faced by dementia caregivers, findings from study should increase our understanding about caregiver burden. Evidence provided by this study can also inform policymakers about effective ways to strengthen social support services for dementia caregivers.

D.16 完成檢誤日期:2016-05-06
D.17 預定釋出日期:2017-08-01
D.18 初次釋出日期:2017-08-01
D.19_1 最新版釋出日期:2019-07-29
3
20180823 失智症患者資料檔(data1)修正變項painc_date, exam_date, cdrdate日期格式。照顧者資料檔(data2)變項care_dob(生日年月日)修正為出生年。
20190729 加入第二波調查資料,更新問卷並刪除dx_1(診斷病名)和painc_date(收案日期)變項。



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10.6141/TW-SRDA-E10260-3
http://efenci.srda.sinica.edu.tw/webview/index.jsp?object=http://efenci.srda.sinica.edu.tw:80/obj/fStudy/E10260
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